A new study has highlighted a disturbing problem that people with MS experience: the shame that prevents them from seeking care. Results from a study by a group of MS organizations show that 38% of MS patients have been ashamed to seek help for symptoms like erectile dysfunction and bladder issues.

Because multiple sclerosis (MS) causes a broad variety of crippling symptoms, many of which are treatable with medicine, the results are cause for alarm. But 85 percent of the 1,400 MS patients surveyed in the UK said they feel embarrassed by at least one symptom. In particular, 59% felt humiliated by problems with their bladders and 27% felt the same way about their sexual dysfunction.

There has been a major effect on the lives of MS patients due to this unwillingness to seek assistance. Half of those who experienced sexual dysfunction reported feeling uncomfortable talking to a healthcare provider about it, and one-fifth of those persons hide their symptoms from their spouses, according to the study.

“Although symptoms like bladder issues, sexual dysfunction, and mobility problems are common, they can be difficult to talk about,” claimed Nick Moberly, chief executive at MS Society. Unfortunately, many patients experience shame as a result of their MS symptoms, according to our new research. Because of this, many have stopped going to the doctor and have even cut themselves off from friends and family.

This unwillingness to ask for assistance might have serious repercussions. Isolation, worse quality of life, and other health problems are possible outcomes of untreated multiple sclerosis symptoms. It is essential that people living with multiple sclerosis feel safe enough to talk about their struggles with healthcare professionals and loved ones.

Together, healthcare providers and MS charities can help normalize conversations about these “embarrassing” symptoms and reduce the stigma associated with them. Support groups, educational initiatives, and easier access to specialized treatment can all help people with multiple sclerosis overcome their fears and seek help when they need it.

By removing stigma, we can help people with multiple sclerosis get the treatment and support they need, which will improve their health in the long run. It is about time that this pressing matter be brought to light so that people with MS can feel safe enough to take charge of their own healthcare.